Ronald Reagan

“ Two private, voluntary health agencies, the American Tuberous Sclerosis Association and the National Tuberous Sclerosis Association, share with the NINCDS the task of informing Americans about this disorder and stimulating more scientific research. All Americans can take heart in the success of this cooperative effort, which is fundamental to the conquest of this disorder. ”

“ Tuberous sclerosis is an inherited disease whose neurological symptoms can run the gamut from speech disorders, mental retardation, and behavioral problems to motor difficulties and seizures. Small benign tumors may grow on the face and eyes, as well as in the brain, kidneys, and other organs. In its most devastating form, tuberous sclerosis leaves patients completely helpless and dependent. ”

“ Approximately one in every 10,000 Americans has tuberous sclerosis, placing this malady among the more common genetic disorders. Yet it often goes unrecognized. White spots that generally appear on the skin early in life are one characteristic sign, but symptoms often take considerable time to develop and are easily misdiagnosed. ”