Ronald Reagan

“ Symptoms of the disease can resemble severe burns and can be very painful and debilitating. Mucous membranes of the mouth, eye, and gastrointestinal tract may be affected and lead to scarring, malnutrition, anemia, and even premature death. ”

“ As many as 25,000 to 50,000 Americans, mostly children, may suffer from LB. The disease can disable people physically because of the pain and anguish it causes, and it also places a severe financial burden on many families. ”

“ The Federal government and private voluntary organizations have developed a strong and enduring partnership committed to EB research in order to reduce or eliminate the disease and its painful consequences. ”